Ulrich Genicke on the MIDATA Health Data Cooperatives in Germany
Platform Cooperativism 2016 conference presentation via https://livestream.com/internetsociety/platformcoop2016/videos/141725493
Platform Co-op Showcase 14 - MIDATA:
"(6 mins) Ulrich Genicke - MIDATA.coop enables citizens to securely store, manage and control access to their personal data by helping them to establish and own national/regional not-for-profit MIDATA cooperatives. MIDATA’s initial focus will be on health related data since these are most sensitive and valuable for one’s personal health. MIDATA cooperatives act as the fiduciaries of their members’ data. As MIDATA members, citizens can visualize and analyze their personal data. They can actively contribute to medical research and to clinical trials by providing access to sets of their personal data across cooperatives."