Genetic Data Sharing Agreements

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James Hazard:

"Patient consents to use of their genetic information in medical research and pharma. This is perhaps the most generalized case of peer contribution, and potentially “orthogonal” to usual hierarchies of clout and wealth. Each person’s genome is unique, hence has some value to us all. “We” are intermediated by the genomics field, which includes pharma, universities, governments and major IT/web companies. At the initiative of the Broad Institute, they formed The Global Alliance for Genomics and Health (GA4GH), to improve standards and interoperability. John Wilbanks is working on this and the GA4GH has done a model patient consent."

More Inforation

  • a quasi-machine readable format, in English, Google-French and German at